On May 7, 2023, the South Asian American Policy & Research Institute (SAAPRI) hosted a groundbreaking Breast Cancer Webinar, solely featuring South Asian women. This event marked the first time in the United States that South Asian women openly shared their personal journeys following a breast cancer diagnosis.

The webinar was moderated by Punita Khanna, a breast cancer survivor and patient advocate. The panelists included Dr. Deepa Halaharvi, a breast cancer surgeon and survivor; Anu Gupta, a two-time breast cancer survivor; and Anita Banerji, a breast cancer survivor and a top fundraiser for the Chicago Race for the Cure.

Breast cancer is one of the most prevalent cancers worldwide, affecting approximately 1 in 8 women and 1 in 833 men. Understanding the epidemiology, risk factors, cultural factors and barriers to care is crucial for effective prevention, early detection, and treatment.

In recent decades, the incidence of breast cancer has shown different trends in various parts of the world. In high-income countries, the incidence has been relatively stable or has shown a slight increase, primarily due to improved screening and early detection programs. And mortality rates have been declining due to advancements in treatment and early diagnosis.

In contrast, low- and middle-income countries have seen a rise in breast cancer incidence, attributed to changes in lifestyle, reproductive patterns, and improved life expectancy. Unfortunately, these regions often face challenges such as limited access to screening and treatment, leading to higher mortality rates.

Awareness and early detection are crucial in the fight against breast cancer. Regular mammograms, clinical breast exams, and self-examinations are vital tools for early detection in women. For men, awareness of breast cancer symptoms, such as lumps or changes in the breast tissue, is essential for early diagnosis.

Advancements in genetic testing have also played a significant role in identifying individuals at high risk, allowing for personalized surveillance and preventive measures.

Cultural factors play a crucial role in the diagnosis, treatment, and management of breast cancer among South Asian women. Several barriers hinder early detection and effective treatment:

  1. Stigma and Taboo: Breast cancer is often associated with significant stigma in many South Asian communities. Discussing breast health is considered taboo, leading to delays in seeking medical attention and reluctance to undergo screenings.
   2. Lack of Awareness: There is a general lack of awareness about breast cancer symptoms, risk factors, and the importance of early detection. Many women in South Asia are not familiar with breast self-examination or the need for regular mammograms.
   3. Access to Healthcare: In many South Asian countries, access to quality healthcare is limited, particularly in rural areas. Even in urban settings, socioeconomic factors can prevent women from receiving timely and appropriate care. Additionally, the healthcare infrastructure may not be equipped to handle the increasing demand for cancer care.
   4. Cultural and Religious Beliefs: Cultural beliefs, including those related to modesty and the role of women in society, can prevent women from seeking care. In some cases, religious beliefs may also influence decisions about treatment options, particularly when it comes to surgeries like mastectomies.

Click here to view the webinar: SAAPRI Breast Cancer Awareness Series, 1st Panel

https://zoom.us/rec/share/5zs5AoIYKDcz7pH4NYILQ5vMES94Z6ORpx1QAWFwMw6dhny_0KwWj-gS7gAaXKHF.MuBDvdW1HjUm1Jn6?startTime=1683673973000
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